A little About Cystic Fibrosis

I first want to thank the crew here at UTBBlogs.com for allowing me to post this first of a few posts into my personal life and why I have stepped back from the BlackBerry community.

Many of you know me through my work in the BlackBerry community starting with hybrids on legacy devices, through app development and then through leaks. But, there is another side of my life that most of you dnt know. I have a child who has a serious genetic illness called Cystic Fibrosis.
Cystic Fibrosis is a genetic disease affecting around 30,000 people in the United States and a total of 70,000 people wordwide. Not a whole lot of people, but when you are one that is affected by it, it seems like your whole life is consumed.
Cystic Fibrosis is a terminal illness, meaning there is no cure. The median age in the US is mid 30’s although that age is increasing, many patients pass away young. Think about this, look at your child, now look at them and imagine knowing you will outlive them. That is what I live with everyday of my life.
CF affects almost every major organ in the body, but most notably the lungs. Causing breathing to be hard. The illness is a lack of salt regulation causing the mucus in the body to become very thick and sticky, holding bacteria that the body can not get rid of. The body then fights this bacteria causing more damage to the organs.
About 80% of patients that live into their 20’s will undergo some type of major organ transplant.
CF is not an easy illness to deal with on a daily basis. I will go more into how it affects our daily lives in a later post.

  • nnik

    Thank you for that! I used to work with a 9 year old with CF at the gym (and his dad) I sort of understand what your dealing with. I say sort of because unless you’re there you can’t know

  • Raider113

    Not a whole lot of people. It’s way too many if it is you or your loved one. My heart goes out to you and your child. I wish you all the best.

  • GRIM

    As a father of a disabled child myself I know how difficult things can be and the heart break you go through, but also all the love that comes with it, keep up the great work, your one of the many unsung hero’s of this world!

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